Hydrocephalus: A Guide for Patients, Families & Friends
Publisher: O'Reilly Media / Patient Centered Guides
Final Release Date: February 1999
Pages: 379

Hydrocephalus, often referred to as "water on the brain," is a potentially life-threatening condition that affects one in a thousand babies born in the U.S. Hydrocephalus is now generally treated with surgical placement of a shunt system that drains excess fluid around the brain to another part of the body where it can be absorbed.As the child grows, shunt revision surgeries are often necessary. Adults with hydrocephalus can be prone to shunt failures or other changes that necessitate subsequent surgeries. Lifestyle choices or pregnancy can strongly impact fluid pressure and health.Authors Chuck Toporek and Kellie Robinson have lived with hydrocephalus for years and have interviewed neurosurgeons, patient advocates, and families living with the condition.Hydrocephalus: A Guide for Patients, Families & Friends informs patient and family so that you can:

  • Select a skilled neurosurgeon
  • Understand what treatments are being proposed
  • Participate more fully in your care
  • Know what you can expect during and after surgery
  • Know symptoms needing attention
  • Know where to turn for support
  • Keep records helpful for future diagnostic or surgical work
Families who read this book will encounter medical facts clearly explained, advice to ease their daily life, and tools for patient advocacy.
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(1 of 1 customers found this review helpful)

 
5.0

Hydrocephalus: A Guide for Patients, Families & Friends Review

By Gloria Rice

from Undisclosed

Comments about O'Reilly Media Hydrocephalus: A Guide for Patients, Families & Friends:

One Sunday while on the telephone, I had a sudden headache. It was a pain in my right eye like what I use to refer as "Brain Freeze." When ever I ate ice cream or would drink cold water I would get this pain, behind my right eye and had to stop eating or drinking. But this time I didn't have anything to eat or drink causing this sudden tremendous pain. I hung up the phone and went to lay down on my bed. If it wasn't for my husband calling 911 and the rescue team calling for a hellicopter to take me to the hospital across town, and a wonderful surgeon I wouldn't be here today. I remained in the hospital & nursing home from Sept.16,2001 to Nov.26,2001. I couldn't eat because I was nauseaus most of the time so my husband gave me Coke Cola to drink, that settled my stomach. I used a wheel chair and a walker to get around for two months. I have rheumatoid arthritus and don't want to be in a wheel chair ever again. Sometimes I use my cane, but only when the waather turns bad.I am 72 years old.

It took me a year to remember what I was wearing that terrible day. And I wondered if anyone else has experienced "Brain Freeze" before they had this operation. Two weeks ago I saw my surgeon for the last time till next year. She said I looked wonderful and have lost 35 pounds. I have a V.P. Shunt and I am a number #2 survivor. By the way I'm also a breast cancer survivor. I will check out your book and apreciate being able to tell someone about my surgery. Thanks

 
4.0

Hydrocephalus: A Guide for Patients, Families & Friends Review

By Gloria Rice

from Undisclosed

Comments about O'Reilly Media Hydrocephalus: A Guide for Patients, Families & Friends:

One Sunday while on the telephone, I had a sudden headache. It was a pain in my right eye like what I use to refer as "Brain Freeze." When ever I ate ice cream or would drink cold water I would get this pain, behind my right eye and had to stop eating or drinking. But this time I didn't have anything to eat or drink causing this sudden tremendous pain. I hung up the phone and went to lay down on my bed. If it wasn't for my husband calling 911 and the rescue team calling for a hellicopter to take me to the hospital across town, and a wonderful surgeon I wouldn't be here today. I remained in the hospital & nursing home from Sept.16,2001 to Nov.26,2001. I couldn't eat because I was nauseaus most of the time so my husband gave me Coke Cola to drink, that settled my stomach. I used a wheel chair and a walker to get around for two months. I have rheumatoid arthritus and don't want to be in a wheel chair ever again. Sometimes I use my cain, but only when the waather turns bad.I am 72 years old.

It took me a year to remember what I was wearing that terrible day. And I wondered if anyone else has experienced "Brain Freeze" before they had this operation. Two weeks ago I say my surgeon for the last time till next year. She said I looked wonderful and have lost 35 pounds. I have a V.P. Shunt and I am a number #2 survivor. By the way I'm also a breast cancer survivor. I will check out your book and apreciate being able to tell someone about my surgery. Thanks

(5 of 5 customers found this review helpful)

 
3.0

Hydrocephalus: A Guide for Patients, Families & Friends Review

By anonymous

from Undisclosed

Comments about O'Reilly Media Hydrocephalus: A Guide for Patients, Families & Friends:

I have had hydrocephalus since I was born and it was refreshing to read your book. Not only did it serve as an informative piece of work it also provided hope. I have had hydrocephalus since birth. Yet I have never seen it as a disability or impairment, instead I have used it as a way to inform others. As a result I am now in college working to earn my nursing degree. I am proof that this disease does not have to slow you down or stop you from living. I realize how fortunate I am to have this disease because it has shaped who I have become

It doesn't have to be the end of a life, instead it should be a beginning

Age:18

(1 of 1 customers found this review helpful)

 
5.0

Hydrocephalus: A Guide for Patients, Families & Friends Review

By Yvonne Ventimiglia

from Undisclosed

Comments about O'Reilly Media Hydrocephalus: A Guide for Patients, Families & Friends:

I haven't yet read the book, but my daughter, age 27, has hydrocephlus and I often thought of writing such a book. I think we have had all the complications known to hydrocephalus, and know how complicated life can be. 27 years ago we were at the beginning of successful treatment (thank God)through use of shunts. Her complications resulted in visual impairment, precocious puberty, hemiplegia and now Type I diabetes which I contribute to some of the extreme pharmacological treatments she endured in her early years resulting from shunt infections.

I encourage ANYONE who has a caring involvement for someone with hydrocephalus to read and understand the lifelong adventure that the condition presents! I have read exerts, and these authors are right on and very informative. I thank them for their loving concern in writing this much needed book.

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